This is the inaugural issue of Sickle In Africa, a bi-annual Newsletter for the Sickle Africa Data Coordinating Center (SADaCC), Sickle Pan African Research Consortium (SPARCO) and the Sickle Pan-African Network (SPAN). Sickle In Africa aims to keep members and stakeholders aware of progress, achievements and upcoming events within SADaCC, SPARCO, SPAN and other partners such as SickleGenAfrica. A brief background to SADaCC and SPARCO is given in the next paragraph.
HemoTypeSC™, is a novel rapid point of care test that uses a lateral flow immunoassay method to detect the presence of HbA, HbS, and HbC with monoclonal antibodies that have very low limits of detection for HbA, HbS, and HbC antigens. These antibodies are blind to HbF, and so even newborns with elevated HbF and low levels of HbA or HbS will be accurately diagnosed.
SADaCC in collaboration with the Genetic Counselling Department at the University of Cape Town recently hosted the Hughes family and their friends from the United States of America on the 13th and 14th of November 2017. The entourage included Mr. Hassan and Mrs. TaLana Hughes, their eldest daughter Hasana, son Hassan, daughter Tianha. Tianha was also accompanied by her friend India.
The first SADaCC and SPARCO Consortium meeting was held in Dar es Salaam, Tanzania and was attended by 30 participants with one participant joining remotely from the US via Skype (whenever the network allowed). The main aim of this 1st SADaCC & SPARCO consortium meeting was optimization of SPARCO and SADaCC implementation plans with the following objectives: a) To review and adjust the project’s milestones and work-plans based on feedback from representatives from all collaborating sites; b) To collect baseline data and conduct a formative assessment of the current status of each site and use this data to adapt the project plan accordingly and for future evaluations; c) To initiate sustainability plans.
Members of the SPARCO Nigeria Site were part of a team of experts who met to include SCD in the World Health Organization Package of Essential Non-Communicable Diseases Interventions for Primary Health Care (WHO PEN).
SADaCC in collaboration with the Genetic Counselling Department at the University of Cape Town recently hosted the Hughes family and their friends from the United States of America on the 13th and 14th of November 2017. The entourage included Mr. Hassan and Mrs. TaLana Hughes, their eldest daughter Hasana, son Hassan, daughter Tianha.
The Sickle Cell Disease Health Passport was developed with the aim of empowering patients to have ownership of their medical records. The passport contains patients’ socio-demographic information as well as records of hospital visits.